Monthly Archives: February 2010

Narcolepsy

Narcolepsy UK

Website: www.narcolepsy.org.uk
Email: [email protected]
Telephone: 0345 450 0394 (Helpline)
Address: NUKPO Box 13842, Penicuik, EH26 8WX

Contact Form can be found here: https://www.narcolepsy.org.uk/helpline

Narcolepsy is a malfunction of the sleep/wake regulating system in the brain resulting in excessive daytime sleepiness. Narcolepsy  UK is a registered charity for people with narcolepsy, their relatives and others interested in improving their lot. Narcolepsy is a rare neurological condition that affects the brain’s ability to regulate the normal sleep-wake cycle. This can lead to symptoms such as disturbed night-time sleep, excessive daytime sleepiness and cataplexy. Consequently, narcolepsy is often thought of as a sleep disorder, but its underlying cause means that it is better classified as a disorder of the central nervous system.

Its aims are:

  • To promote awareness of narcolepsy and provide authoritative information about it to narcoleptics, to the medical profession and to the public.
  • To support the establishment of local self-help groups in which narcoleptics can exchange experience and provide mutual support.
  • To press for the recognition of narcolepsy as a disability by the social services.
  • To encourage research into the causes and treatment of narcolepsy.
  • To co-operate with narcolepsy associations overseas to further these aims.

Follow us on Face Book @narcolepsyuk and Twitter @NarcolepsyUK

Muscular Dystrophy UK

Muscular Dystrophy UK

Website: https://www.musculardystrophyuk.org/
Email: [email protected]
Telephone: 020 7803 4800

Helpline: 0800 652 6352 (Monday-Friday, 8.30 am-6 pm)
Address: 61 Southwark Street, London, SE1 0HL

We are a registered UK charity for individuals and families living with muscle-wasting conditions.Our charity provides free care and support for babies, children and adults affected by muscle disease, funds world-class research to find treatments and cures, provides grants towards equipment and campaigns to raise awareness and bring about change.

Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK. We bring together people affected by more than 60 rare and very rare progressive muscle-weakening and wasting conditions.

Muscle-wasting conditions are very rare, affecting just over one in every 1,000 people. As a result, some health professionals may never come across anyone with a muscle-wasting condition and may not know much about them-but we do.

West Midlands Muscle Group:

The West Midlands Muscle Group is a great opportunity to meet people and their families in the region affected by muscular dystrophy or a related condition, as well as share information and advice through peer to peer support.

The group also fights to strengthen neuromuscular services in the region and help ensure that patients get the support they need.

As well as discussing experience of services, group meetings also focus on other topics important to people affected by muscle-wasting conditions.

Contact: David Stephenson at Muscular Dystrophy UK on [email protected] or 020 7803 4838.

Find us on Face Book @musculardystrophyUK and Twitter @MDUK_News

Registered Charity No. 205395 SC SC039445

ms-society

MS Society

Website: https://www.mssociety.org.uk/

Email: [email protected]

Contact Form: https://e-activist.com/page/30595/data/1?_ga=2.193108525.1275090283.1555089397-977733817.1554468923

Telephone: 020 8438 0700

Telephone-Support Care Team: 0300 500 8084 Monday to Friday, 9 am to 5 pm 

Questions about MS: 0808 800 8000

Address: MS National Centre (MSNC), 372 Edgware Road,  London NW2 6ND

The MS Society is for people affected by multiple sclerosis (MS) – about 100,000 people in the UK. Information and support is available to anyone affected by MS from a network of over 350 local branches. The National Centre offers information, advice, a place where learning and teaching about MS can be shared, and a focal point for the UK-wide MS Society.

 

MS Branches

Montgomeryshire MS Group https://www.mssociety.org.uk/care-and-support/local-support/local-groups/montgomeryshire-group/ms-support—montgomeryshire-group

Email: [email protected] Su Rollinson (Volunteer Support Team Lead)

Telephone: 01686 641843

Address: Factory Cottage, Brooks,Near Berriew, Welshpool SY21 8QR

MS Society Montgomeryshire Group is a local branch to Montgomeryshire, giving help and advice to those with MS and their families/carers. We have social activities. We can  supply written information covering all aspects of MS, benefits and respite care. There is financial support for disability aids, special equipment and respite care upon application and complying with MS National Centre guidelines. The group offers support for those with MS, their families and carers, via telephone and email contact and visits made throughout Montgomeryshire. Please contact them by telephone or email, details below.

Find us on Face Book 

 

 

Oswestry and District Support Group https://www.mssociety.org.uk/care-and-support/local-support/local-groups/oswestry-district-group/ms-support—oswestry-and-district-group
Contact: Isabel Horne
Email: [email protected]
Telephone: 01691 652238
Activities include: Monthly meetings. This is a support group.Our group has MS Support Volunteers who are trained to confidentially offer emotional support, information, help to access specialist services and help to get financial support.

 

Shrewsbury and District Support Group https://www.mssociety.org.uk/care-and-support/local-support/local-groups/shrewsbury-district-group/monthly-support-group

Email: [email protected]

Branch Helpline: 01743 718641

Meeting Address: The Lantern,Meadow Farm Drive, Harlescott, Shrewsbury, SY1 4NG
Covers Shrewsbury, Whitchurch, Wem, Church Stretton, Ludlow and Bridgnorth areas.

Activities  include:  We meet on the first Thursday of each month 10 am-3 pm at The Lantern for beneficial exercise, social time and to hear a speaker on a topic of general interest. We also play Boccia for fun. 

The group runs a free yoga class for MS sufferers at The Lantern in Shrewsbury on the second Thursday of each month from 1.30 pm to 3 pm, but everyone is welcome, and they also run a Tai Chi class at The Lantern on the third and fourth Thursday of each month from 1.30 pm to 3 pm.

Find us on Face Book @shrewsburymss and Twitter @ShrewsburyMSS

 

 

South Shropshire Support Groups https://www.mssociety.org.uk/care-and-support/local-support/local-groups/shrewsbury-district-group/south-shropshire-monthly-support-group

Meets at Millmead, Mayfield Avenue, Craven Arms, Shropshire  SY7 9PR

Multiple Sclerosis Support Group is for anyone with MS, either newly diagnosed, currently living with MS or a carer or friend of a MS patient.

The support group takes place once a month on the last Friday of the month, 10 am-1 pm at Millmead in Craven Arms.  Drop in for a friendly chat with fellow MSers and enjoy a free coffee and chat.

 

Telford District MS Group https://www.mssociety.org.uk/care-and-support/local-support/local-groups/telford-district-group

Email: [email protected]

Telephone: 07866 628 593

Activities include monthly drop-in meeting at the Salvation Army Hall in Oakengates on 2nd Thursday of every month, starting at 12.30 pm; a range of palliative care programmes in conjunction with the Princess Royal Hospital, 2 professional specialist MS Nurses, Yoga for MS, physiotherapy sessions, outings and social gatherings, provision for respite care, help with home adaptations and medical equipment.

Club MS https://www.mssociety.org.uk/care-and-support/local-support/local-groups/telford-district-group/club-ms

Club MS is a group aimed at young people in the region who are affected by MS. The group offers support and regularly runs social events and activities. For details contact 07972 614307

 

Find us on Face Book @MSSociety and Twitter @mssocietyuk

Registered Charity Number England and Wales 1139257  and Scotland SC041990. 

MS -UK

MS-UK (formally Multiple Sclerosis Resource Centre)

Website: https://www.ms-uk.org/

Email: [email protected]

Contact Form: https://www.ms-uk.org/contact

Telephone: 01206 505444

Helpline: 0800 783 0518

Address: Unsworth House, Hythe Quay, Colchester, Essex, CO2 8JF

MS-UK is a national charity formed in 1993. We are here for people affected by multiple sclerosis – that’s around 107,000 people in the UK and 2.3 million worldwide. MS-UK is here for anyone affected by multiple sclerosis, to empower them to live healthier and happier lives by improving the understanding of MS and providing support where it is needed most. 

Watch the video here: https://youtu.be/RonxDi1d_6c

MS-UK is here so that you can access the information and support you need to have independence, choice and control. Here you can find out more about our services, and how we can help you.

We’re here to support you, whether you are awaiting a diagnosis of multiple sclerosis or have been living with the condition for years. By listening to people affected by MS, we have developed resources about a range of topics, from diagnosis, drug treatments and research to complementary therapies, cannabis and supplements. 

The MS-UK Helpline is open 9 am – 5 pm, Monday to Friday, and our trained staff are available to speak on the telephone or online via live web chat, or via email, whichever suits you. 

 

Find us on Face Book @MultipleSclerosis and Twitter @MSUK6 

Registered Charity Number: 1033731

DASH

DASH – Disability Arts in Shropshire

Website: www.dasharts.org

Email: [email protected]
Telephone: 01743 272939/271676
Minicom: 07807 615531
Contact: Mike Layward (Artistic Director), Paul Darke (Visual Arts Manager), Paula Dower (General Manager)
Address: The Hive, 5 Belmont Shrewsbury SY1 1TE

DASH is a practical Disability Arts development organisation, which works across the West Midlands and the Welsh Borders, with Disabled and Deaf people. DASH is a registered charity and a registered company. It is supported by Arts Council England, Advantage West Midlands, Shropshire Council and the Shropshire Access Partnership.

DASH works in partnership with arts and cultural organisations to develop Disability Arts practice. Outside IN is our new three year arts development programme, working in partnership with three galleries in the West Midlands and Welsh Borders.

DASH is based at Hartley Business Centre where we have 150 square metres of accessible meeting room, workshop and artspace. There is ground level access with plenty of parking. If you are looking for a place to meet, work or play rates start at £7.50 per hour. Whether you are an artist, organisation, club or individual the space is open for you.

Aims:

  • to promote and support disabled artists and disabled people interested in the arts
  • to promote and support disabled people as an arts audience
  • to run arts workshops and projects, to undertake research and to deliver training
  • to promote and run events that include all members of the community

DASH’s work breaks down into four areas:

  • Visual and Digital arts
  • Performing arts
  • Information and Advice
  • Audience Development

Disability Access Statement

DASH works with the Social Model of Disability, DASh believes and practices in equality of opportunity for everyone.

Follow us on Facebook Dash Arts and Twitter @DASH_ARTS 

Charity Registration Number 1090677

Disability Arts Cymru

Disability Arts Cymru

Website: https://www.disabilityartscymru.co.uk
Email: [email protected]

Contact Form: https://www.disabilityartscymru.co.uk/about-us/contact-us
Telephone: 029 2055 1040
Minicom: 029 2055 1040
Address: Disability Arts Cymru, Sbectrwm, Bwlch Road, Fairwater, Cardiff, CF5 3EF

Disability Arts Cymru believes that Disabled and Deaf People have an exciting and valuable contribution to make to the arts in Wales. Disability Arts Cymru  are committed to working with individuals and organisations to celebrate the diversity of Disabled & Deaf People’s arts and culture, and develop equality across all art forms.

Aims:

  • Create more opportunities for Disabled & Deaf People to develop their skills in the arts
  • Raise the profile of arts by Disabled & Deaf People
  • Work in partnership with other organisations on arts related projects
  • Advise on issues related to disability and the arts
  • Consultancy service around policy development
  • Arts-specific Disability Equality Training
  • Regular publication; What’s On

Find us on Face Book @disabilityartscynru and Twitter @DACymru

BT Including You

BT Inclusion

Website: https://www.btplc.com/inclusion/index.htm

Contact Form: https://bt.custhelp.com/app/contact_email/c/1885
Textphone: 0800 800 150
General number: 0800 800 150

Address (Correspondence) BT Correspondence Centre, Providence Row, Durham DH98 1BT 

Contact us using British Sign Language (BSL)

BSL users can use the SignVideo interpreting service to get in touch with us.

How to use the Sign Video interpreting service

Contact wizard

Alternatively, you can use our Contact wizard. We’ll ask you a few simple questions about what you want to contact us about to make sure you get through to the right person. You’ll then be able to choose whether you want to phone or email us.

Go to the Contact wizard

If you’re one of the millions of people in the UK living with an impairment, this site is for you. We’ve brought together a wealth of information and advice on how you can use the phone, internet and TV to carry on doing everything that’s important to you – whether it’s staying in touch with friends and family, keeping on top of your bills or watching the latest blockbusters.

Twitter  If you’re familiar with Twitter, you can contact us @BTCare. We’ll tweet you back as soon as we can.

Go to @BTCare on Twitter

BT products that can help with hearing, sight dexterity or mobility loss; try before you buy, exhibitions at events, help with communications, getting online. 

 

British-Tinnitus

British Tinnitus Association

Website: https://www.tinnitus.org.uk/

Email: helpline@tinnitus.org.uk
Confidential Helpline:  0800 018 0527 (free of charge within the UK only) Our lines are open: Monday – Friday, 9 am – 5 pm. 

0114 250 9922(national rate within the UK only)

0114 250 9922 outside the UK

Minicom: 0114 258 5694 within & outside the UK

Fax:  0114 258 2279
Address: The British Tinnitus Association, Ground Floor, Unit 5, Acorn Business Park, Wood seats Close, Sheffield, S8 0TB

The British Tinnitus Association is a world leader in providing support and advice about tinnitus. We provide accurate, reliable and authoritative information, much of it written by medical professionals or clinical researchers. Most of it is available on the website and is free to download and use. We operate a confidential helpline (operated by staff with over 50 years of cumulative experience).

  • We seek to promote ‘Better Tinnitus Awareness’ through information leaflets
  • We have our own research programme and provide bursaries for UK professionals to pursue their interest in tinnitus
  • Our Professional Advisers’ Committee includes some of the leading UK professionals working on tinnitus
  • We’ll help you locate your nearest tinnitus support group
  • We have school education programmes
  • And we run training courses and hold an annual conference

Find us on Face Book @BritishTinnitusAssociation and Twitter @BritishTinnitus

The British Tinnitus Association is a Registered charity no. 1011145

BDA-Logo

British Dyslexia Association

Website: https://www.bdadyslexia.org.uk/
Email helpine: [email protected]
Email: [email protected]
Helpline: 0333 405 4567

Helpline Contact Form: https://www.bdadyslexia.org.uk/contact

Helpline Opening Hours: Tuesday 10 am - 1 pm, Wednesday and Thursday 10 am – 3 pm.

Telephone: 0333 405 4555
Address: Unit 6a Bracknell Beeches, Old Bracknell Lane, Bracknell RG12 7BW

The BDA promotes early identification and support in schools to ensure opportunity to learn for dyslexic learners. They represent the needs of dyslexic people on leaving school, in higher education and in work. Information and Activities are given for teachers and schools, those within the further or higher education sectors, adults and those in employment and parents and families.

Local Dyslexic Associations can be found at this link: http://www.bdadyslexia.org.uk/membership/local-dyslexia-associations/lda-directory

Local Dyslexia Associations (LDAs) are independently registered charities. They have helplines, befrienders and computer co-ordinators. They hold meetings with speakers and workshops, run courses, and have literature for sale and for borrowing. LDAs know of local facilities for assessment and tuition.

Shropshire Dyslexia Association details:

General: 01939 233 141 – Daytime & Evening
E-mail: [email protected]
Web: www.thesda.org.uk
Area: Telford & Wrekin (TF) Powys CC, Wrexham CC

Find us on Face Book @bdayslexia and Twitter @BDAdyslexia

British Dyslexia Association is a Registered Charity No. 289243

Motability

Motability (the charity)

Website: https://www.motability.org.uk/?ssSourceSiteId=motability
Telephone: 01279 635999 (Open 8.30 am to 5.30 pm Monday to Friday)
Minicom/Textphone:  0300 037 0100

Address: Warwick House, Roydon Road, Harlow, Essex, CM19 5PX

Motability is a national charity, set up on the initiative of the Government in 1977, to assist disabled people with their mobility needs. They direct and oversee the Motability Scheme which enables disabled people to obtain a car, powered wheelchair or scooter simply by using their government-funded mobility allowances.

The Motability Scheme offers worry-free mobility to disabled people and their families. Recipients of the Higher Rate Mobility Component of the Disability Living Allowance, or Personal Independent Payment (PIP) at the Enhanced Rate of the Mobility component or War Pensioners’ Mobility Supplement or Armed Forces Independent Payment (AFIP) can transfer their allowance for a car, powered wheelchair or scooter.  Carers and parents can drive on behalf of the disabled person, so parents of children (from the age of three) and non-drivers can apply to join. The vehicle must be used by, or for the benefit of, the disabled person.

The most popular choice is the Car Scheme Contract Hire option which offers:

  • A new car every three years (choose from the major manufacturers)
  • Maintenance, servicing and repairs included from accredited dealers across the UK
  • Insurance for two named drivers
  • Breakdown cover
  • Tyre replacements
  • Tax disc sent through the post
  • 60,000 mileage allowance over three years

There are currently more than 4,500 Motability accredited dealerships across the UK and more than 4,000 models to choose from across nearly 40 manufacturers. As a national charity, Motability also raises funds and may be able to provide financial assistance for people who would otherwise be unable to afford the mobility solution they need. Financial assistance may be available towards the cost of larger cars, adaptations, driving lessons or wheelchair accessible vehicles.

 

Find us on Twitter @MotabilityPress

Registered Charity in England and Wales No. 299745