Monthly Archives: July 2010

OSCA – Citizen Advocacy (closed 2016)

Website: No longer available as OSCA ceased in 2016

Volunteers to support and represent people with learning

difficulties throughout Shropshire

Email: [email protected]
Telephone: 01743 368370
Address: OSCA Citizen Advocacy, The Roy Fletcher Centre, 12-17 Cross Hill, Shrewsbury, Shropshire SY1 1JE

OSCA: Sadly this charity ceased to operate in 2016 and no longer exists

  • creates and supports partnerships between volunteers (Citizen Advocates) and people with learning disabilities (Partners)
  • provides short term and crisis advocacy
  • gives talks and can provide training on advocacy and related issues (contact us to discuss)
  • works to find ways of enabling people with learning disabilities to take more control over their own lives
  • holds regular social events for advocates, partners and friends
  • answers enquiries and makes referrals
  • works with other agencies and organisations on behalf of our partners such as
    – British Institute of Learning Disabilities
    – Advocacy and similar interest groups in Shropshire such as Taking Part, Mencap and PCAS
    – Social Services
    – Health Authority
    – Providers of residential care
    – Local Colleges and other education providers
    - Police
    – Employment services such as Landau and Enable

 

Disability related films on the BBC

Every week, the Ouch! Newsletter has a Stuff section, where we draw the reader’s attention to disability related programmes, either coming up or available to watch on iPlayer.

    On iplayer you can watch  Small Teen Big World, follows the relationship between Jasmin and her mum, who both have an undiagnosed form of dwarfism. Screened on BBC Three.

    Being a teenager is tough, but for 16-year-old Jasmine Burkitt it is even harder, because she is just 3’8″ tall and only fits clothes designed for a seven to eight-year-old.

    The 12 months captured in this documentary are the most important of Jasmine’s life so far. She goes to New York to meet others with similar genetic conditions; camps out at her first pop festival; celebrates her sixteenth birthday and tries to contact her estranged father who is average size. Unexpected events in this engaging teenager’s life make this a compelling film. Part of The Adult Season on BBC Three.

    Other programmes include:
    The first in a new series of Word of Mouth, originally broadcast on Radio 4, discusses the different ways in which deaf people communicate. Features an interview with Charlie Swinbourne.

    Sound Waves from the BBC’s Film Network, follows two families, both with children who are deaf. One has decided to give their son a cochlear implant, the other has not. Why?


    Issue 3, August 2010 – OUT NOW!

    Link to printable version Welcome to our third Newsletter.

    In response to readers’ comments, we have improved the layout for the Newsletter to make it easier to read online. Articles are summarised in a short paragraph and can be read in detail by following the link in the article.

    But if you don’t read the Newsletter online, don’t despair! The full Newsletter is still available in black and white format for an annual charge of £12. Payment should be sent to Shropshire Disability Network, to SDN c/o Tom Memery, Treasurer, Omega, London House, Town Walls, Shrewsbury, Shropshire SY1 1TX.

    Your news, views and events are always welcome for inclusion in the Newsletter. Please send articles to Sally Barrett, Editor, email [email protected].

    To view SDN Newsletter issue  3 August 2010 (pdf) click here

    To view a printable version of the Newsletter click here

    Transverse Myelitis Society

    Link to websiteWebsite: www.myelitis.org.uk

    Telford TM Society Telford TM Society
    UK support Groups: www.myelitis.org.uk

    Email: [email protected]
    Contact: Lew Grey

    TM is a rare disorder, involving an inflammatory attack in the central nervous system. This can happen anywhere along the spinal cord, causing a ‘lesion’ usually visible on an MRI scan.

    Attacks are normally one-off episodes, but sometimes recur in different places along the spinal cord. Many people, even if severely affected initially, will make a good recovery within a few months following an attack. But most people are permanently affected to some degree.

    The TM Society is a national charity completely dependant on donations.

    Telford TM (Transverse Myelitis) Support Group

    LINK TO WEBSITEWebsite: http://sites.myelitis.org.uk/telford-west-midlands/
    Email: [email protected]
    Contact: Anna Paulsson-Habegger
    Mobile: 07748902396
    SDN listing for Transverse Myelitis Society

    Meeting dates: every second month between 2-4pm  Contact: Anna Paulsson-Habegger Mobile: 07748902396 for  dates
    Address: Ketley Community Centre, Holyhead Road, Ketley, Telford, Shropshire TF1 5AN

    A small informal group supporting people with Transverse Myelitis and other disabilities.

    TM is a rare disorder, involving an inflammatory attack in the central nervous system. This can happen anywhere along the spinal cord, causing a ‘lesion’ usually visible on an MRI scan.

    Attacks are normally one-off episodes, but sometimes recur in different places along the spinal cord. Many people, even if severely affected initially, will make a good recovery within a few months following an attack. But most people are permanently affected to some degree.

    Family or friends are also welcome to the meetings.  Coffee/Tea provided. Wheelchair accessible.

    st Georges

    St George’s Disabled Cricket Club

     

    • Coaching sessions continue to be held at TCAT each Saturday 9.30 am – 11.30 am @ TCAT (Telford College of Arts & Technology) indoor sports hall
    • Outdoor training to commence Mid April @ St Georges Sports & Social Club (Telford)
    • First few sessions are free for new members, continued training is £3.50 per 2 Hr. session
    • Run by Telford‘s St Georges Disability Cricket Club • Contact details above for further information

    Area: Telford & Wrekin

    Website: http://stgeorgesdisabledcricket.webs.com/

    Email: Ian Halford [email protected]

    Telephone:  01952 275 297/ 07773 155 840

    Address: St Georges Cricket Club, St Georges Sports & Social Club, Church Street, St Georges, Telford, Shropshire TF2 9LU

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    UCanDoIT (is closing)

    Link to websiteWebsite:  www.ucandoit.org.uk
    Email: [email protected]
    Telephone/Minicom: N/A

    See this page of UCanDoIt website stating UCanDoIt is no longer a going concern and is closing. http://www.ucandoit.org.uk/news/ucandoit-no-longer-going-concern-and-closing

     

    UCanDoIT was a charity teaching blind, deaf and disabled people a range of computer skills including email, the Internet and basic word processing in their own homes.

    Over the past 10 years nearly 3,000 learners, with over 80 different disabilities, have graduated from our course. We teach disabled learners from all backgrounds, all age groups and specialise in training individuals using specialist software and hardware.

    Many disabled people are unable to attend classes, which is why UCanDoIT provides a CRB checked tutor to give them lessons on a one-to-one basis, in their own homes, on their own computers.

    This is the story of Beryl, 79, who lives near Telford, Shropshire:

    Beryl says “I was diagnosed with wet macular degeneration 7 years ago – I had laser treatment  but the degeneration couldn’t be halted.   When this happened I was retired from teaching  but I still taught on a one to one basis. I was determined that my life should go on as normally as possible. As a sighted person and keen reader I had little interest in computers and had always enjoyed writing by hand, but I quickly realised that a computer was going to be a necessity.

    I have always been interested in current affairs and I so miss being able to read newspapers. I need to learn how to operate the web to keep myself informed and up to date. For instance – how do I access a ‘blog’? Last year, together with three other macular suffers/carers we set up a Telford branch of the Macular Disease Society. As you can imagine, this very much necessitates the use of the computer.

    I tried my local College and signed on for a 6 month course which I attended every session. They were totally incapable of loading up the programme that I was supposed to be working on – it was a total waste of time and money. I also was directed to the local library that had the computers but no tuition.     I needed and still need help from someone who understands the specific problems of a macular condition and has the patience to work with an impatient, frustrated but keen elderly student. Where else could I get it?”

    UCanDoIT is a registered charity and charges just £5 per lesson for learners on a low income and works on a sliding scale for those on higher incomes. The charity receives no funding from Central Government and very little from local Government and relies on grants and donations to continue its work.

    The Arthrogrypsis Group

    Link to websiteWebsite:  www.tagonline.org.uk/
    Email:  [email protected]
    Help Desk:  0800 028 4447 (9.00 am – 5 pm) email [email protected]
    TAG, PO Box 5336, Stourport-on-Severn, DY13 3BE

    Arthrogryposis:  you could have been living with it for years, and only just have had a diagnosis; or, like me, you might be a parent (or a parent-to-be) of a child with arthrogryposis. Either way, you’ve found your way to The Arthrogryposis Group and this website is the first step into a community where you’ll find understanding, support and celebration of all that life with a disability can throw at us!  The word Arthrogryposis literally means curved joint, implying that it is fixed or stuck in the curved position.

    What we do:

    • We know how important it is to have someone to talk to and if you have any questions or concerns about AMC or want to speak with someone who understands the issues, ring our Helpline.
    • We can offer telephone support on a regional cluster basis where all the volunteers of our Contact Network have a wide experience of arthrogryposis. Each one lives day-to-day with the condition and all are willing to share their personal knowledge and skills, whether it be that they themselves are affected or their child.
    • We arrange area get-togethers and social events where people can meet each other and exchange experiences.
    • And each year we organise and host an Adventure Camp for Teenagers and a Family Weekend.