Monthly Archives: February 2019

Kids

Kids (giving disabled children a bright future)

Website: https://www.kids.org.uk

Email: N/A please use contact form at the link below.

Contact Form: https://www.kids.org.uk/Pages/Contact.aspx

Telephone: 0207 359 3635

Address: Head Office 7-9 Elliott’s Place, London N1 8HX

Address KIDS West Midlands: 249 Birmingham Road, Wylde Green, Sutton Coldfield, West Midlands B72 1EA 

Telephone: 0121 355 2707

KIDS are a national charity, founded over 47 years ago, providing a wide range of support services to disabled children, young people and their families. We support children with any disability from birth to 25 years of age. We offer our support to the whole family with the aim of giving disabled children a brighter future.

We work across England supporting disabled children, young people and their families, helping them cope with their disabilities and making sure they are given every opportunity to fulfil their potential.

We are passionate about making a life-changing, positive difference to the lives of disabled children and young people and their families.

Everything we do places the child at the centre of our support, our services then focus on providing care, which wraps around the child within their family.

Find us on Face Book @KidsCharity and Twitter @KidsCharity

Registered Charity Number 275936 

Kidscape Logo

Kidscape (Help with Bullying)

Website: https://www.kidscape.org.uk/

Email: [email protected]

Telephone: 020 7730 3300

Parent Advice Line call 020 7823 5430 (Monday-Tuesday, 10 am-5 pm)

Address: Kidscape, 2 Grosvenor Gardens, London SW1W 0DH

Our vision is for all children to grow up in a world free from bullying and harm, with adults who keep them safe and help them to reach their full potential.

Our mission is to provide children, families, carers and professionals with advice, training and practical tools to prevent bullying and protect young lives.

Our values

  • We believe that every child has the right to live life free from bullying and harm
  • We believe that all adults have a responsibility for creating safe and nurturing environments for children
  • We value the role of parents and carers and work with them to keep children safe
  • We believe that by working together we can protect more young lives and actively encourage partnership work

Find us on Face Book @KidscapeCharity and Twitter @Kidscape

headway featured Image

Headway

Website: www.headway.org.uk
Email: [email protected]

Email Helpline: [email protected]
Telephone: 0115 924 0800  Fax: 0115 958 4446

Helpline: Helpline: 0808 800 2244

Contact Form: http://www.headway.org.uk/contact-us/

Address: Headway -the Brain injury association, Bradbury House, 190 Bagnall Road, Old Basford, Nottingham NG6 8SF

London Office Details:

Telephone: 020 8640 8413

Address: Unit 1, College Fields Business Centre, 16 Prince Georges Road,London
SW19 2PT

Headway works to improve life after brain injury. Their objectives are:

  • To increase awareness of brain injury and its consequences
  • To initiate activities and campaigns which will reduce the incidence of brain injury
  • To provide information and support for people with brain injuries, their relatives and carers and concerned professional people
  • To promote improved approaches to brain injury screening, acute care, assessment, rehabilitation and social re-integration
  • To assist people with brain injuries to return to community living, including access to appropriate accommodation, social outlets, and productive activity.

We provide practical help in the following ways:

  • Information – printed booklets covering brain injury symptoms, rehabilitation and practical issues
  • fact sheets available to download, giving you brief, easily accessible information free of charge.

Headway’s free, confidential helpline is open to anyone with a question about brain injury. We provide information, sign-posting to other organisations and a chance to talk through your issues.

Headway’s network of local groups and branches covers most of the UK, providing support and services to brain injury survivors, their family and carers. 

Click this link to find Headway in your local area: http://www.headway.org.uk/supporting-you/in-your-area/

Find us on Face Book @headwayuk and Twitter @HeadwayUK

Headway – the brain injury association is registered with the Charity Commission for England and Wales (Charity no. 1025852) and the Office of the Scottish Regulator (Charity no. SC 039992). 

Hope again

Hope Again (young people living after loss)

Website: https://www.hopeagain.org.uk/#

Email: [email protected]

Contact Form: https://www.hopeagain.org.uk/hope-again-contact-us

Telephone: FREE phone helpline on 0808 808 1677 Monday-Friday, 9:30 am – 5:00 pm

Address: Local Office The Roy Fletcher Centre, 12-17 Cross Hill, Shrewsbury SY1 1JE

Hope Again is Cruse Bereavement Care’s website for young people.  Cruse is a national charity that provides support, advice and information to children, young people and adults when someone close to them dies. We also work to enhance society’s care of bereaved people.

Some people find that talking about what’s happened, or how they’re feeling, is helpful, even though it can be really hard.

Hope Again is another place where you can talk about your grief.  When you send us your message by clicking the ‘Talk To Us’ button on the homepage here https://www.hopeagain.org.uk/ a young person will personally reply to you, and the messages and stories you send will be monitored by young people. Find out more at this link https://www.hopeagain.org.uk/hope-again-talking-about-it It tells you how talking may help you.

What is Cruse Bereavement Care?                                                                              

Cruse has been offering bereavement support in England and Wales since 1959 and in Northern Ireland since 1984. 

Cruse is a national charity that provides support, advice and information to children, young people and adults when someone they love dies. We also work to enhance society’s care of bereaved people.

Cruse services are provided free of charge and are dependent on the generosity of the local community and statutory support to deliver the service.

Cruse services are provided by dedicated and skilled volunteers in local communities who support children, young people and adults through grief.

Someone to turn to for young people

At Cruse we can offer a safe, youth friendly space where young people can work through their grief in their own time and own way accompanied by a trained and experienced volunteer who will work individually with the young person over a period of 6-8 weekly sessions.

Find us on Face Book Cruse Bereavement Care and Twitter @CruseCare

Cruise Bereavement Care is a Registered Charity No. 208078 

 

 

IGA

IGA (International Glaucoma Association)

Website: https://www.glaucoma-association.com/

Email: [email protected]

Email: [email protected] (For general enquiries, including advice about glaucoma or membership) 

Telephone: 01233 64 81 64 or 01233 648170

Helpline-Sightline glaucoma : 01233 64 81 70  Monday – Friday 09:30 – 17:00

Member support: 01233 64 81 64  Monday – Friday 09:00 – 17:00

AddressWoodcote House, 15 Highpoint Business Village, Henwood, Ashford, Kent TN24 8DH

We provide information for everyone who is interested in glaucoma, people who have just been diagnosed, or anyone living with glaucoma. 

IGA are a UK based charity, committed to preventing unnecessary loss of sight through the condition, which is one of the most common eye disorders.

We provide support to thousands of glaucoma patients; arranging meetings in the UK through the year and providing a regular newsletter to members and friends as well as overseeing a network of support groups and fund research.

Glaucoma is the name given to a group of eye conditions in which the main nerve to the eye (the optic nerve) is damaged where it leaves the eye. This nerve carries information about what is being seen from the eye to the brain and as it becomes damaged vision is lost. This results in misty and patchy vision, with eventual loss of central vision, although this is rare.

IGA can provide leaflets, they have support groups, have a helpline, provide a buddying system. They also raise awareness and have a membership that you can join.

Find us on Face Book @internationalglaucomaassociation and Twitter @TweetIGA

Charity Registered: in England & Wales No 274681 in Scotland No SC041550

No Panic

No Panic

Website: https://www.nopanic.org.uk/

Email: [email protected]

Contact Form: https://www.nopanic.org.uk/contact-us/

Telephone: 01952 680460 (Office open Monday-Friday 9 am-5 pm)

Telephone: 0844 967 4848 (Helpline)

Youth Line: 0330 606 1174 *For 13 to 20 year olds, 
Opening times-Monday, Tuesday, Wednesday, Friday: 3 pm to 6 pm,Thursday: 3 pm to 8 pm and Saturday: 6 pm to 8 pm

Address: Jubilee House, 74 High Street, Madeley, Telford TF7 5AH

No Panic is a registered charity which helps people who suffer from Panic Attacks, Phobias, Obsessive Compulsive Disorders and other related anxiety disorders including those people who are trying to give up Tranquillizers.

No Panic also provides support for the carers of people who suffer from anxiety disorders.

Severe anxiety and phobic disorders are a major and widespread problem. Recent surveys indicate that they affect up to 18% of the population of the United Kingdom.

It is a voluntary organisations that provides professional support and specialises in self-help recovery and our services include specialist help with:

  • panic attacks
  • phobias
  • obsessive compulsive disorder (ODC)
  • related anxiety disorders
  • tranquilizer withdrawal

We also provide support to sufferers, their families and carers.

Providing people with the skills they need to manage their condition and work towards recovery, enabling them to lead more fulfilled lives.

Find us on Face Book  and Twitter @charitynopanic

Registered Charity Number 1018184

Youareable

Website: https://www.youreable.com/

Email: [email protected] or [email protected]

Telephone: 0207 289 6111 (office)

Telephone: 0300 999 0004  (Tuesday to Thursday to 10 am to  4 pm)

Address: Youreable.com, c/o Disabled Living Foundation, Unit 134 Chatfield Road, 
London SW11 3SE

This is an on-line community of and for disabled people.

Discussion Forum: [email protected]

The Disabled Living Foundation (DLF) delivers information, advice, training and learning events to guide older and disabled people to the practical equipment solutions to everyday living. It is the leading national charity providing information across multiple technology areas from wheelchairs to kitchen aids, bathroom adaptations to clothing, telecare to leisure equipment. We work in partnership with many other charities to support their members to find the information that is vital to maximising independence.

In late 2009 the Disabled Living Foundation (DLF) took over running Youreable and today is responsible for hosting and moderating the site day-to-day. The Forum currently has 300 active users who log in to the site at least once a week to answer questions and provide guidance and 60,000 visitors to the site each year.

Find us on Face Book and Twitter via Disabled Living Foundaion

creative support 250-253

Creative Support

Website: www.creativesupport.co.uk

Email: [email protected]

Contact Form:  http://www.creativesupport.co.uk/contact-form/

Telephone: 0161 236 0829 Fax: 0161 237 5126

Address: Creative Support Ltd, Wellington House, 131 Wellington Road South, Stockport SK1 3TS

Creative Support is a high quality provider of person centred social care services for people with learning disabilities, physical disabilities, acquired brain injury, mental health and other needs.

To support our service users we provide a range of services to meet their differing needs, including supported living, supported housing, residential care, community and home support, floating support, extra-care and day services. We work with people who have a wide spectrum of needs, ranging from those who require short term support to regain their independence to people with complex needs who require intensive support to enjoy a good quality of life. As a not for profit agency (a registered society with charitable status) we are committed to using our assets and resources to create opportunities for the people we support.

Find us on Face Book  @crtvspprt and Twitter @crtvspprt

British Wireless

British Wireless for the Blind

Website: https://blind.org.uk/

Email: [email protected]

Contact Form: https://blind.org.uk/contact/

Telephone: 01622 754 757 (Monday to Friday, 9 am to 5 pm)

Address: British Wireless for the Blind Fund and BWBF Direct (for radio purchases)
10 Albion Place,Maidstone, Kent, ME14 5DZ.

Living with sight loss can be lonely and isolating, causing many to revert into themselves only making this issue worse. The British Wireless for the Blind Fund can provide easy to use audio equipment, on a permanent free loan basis, to blind and partially sighted people. 

We supply specially adapted audio equipment to those who would not usually be able to afford it, on a free loan to visually impaired people all across the UK.

We are not government funded so it is thanks only to the continued generosity of our supporters that we can carry on helping people who need it the most.

The number of people living with sight loss is set to double to more than 4 million by 2050, and we aim to make life for those suffering better.

Find us on Face Book British Wireless for the Blind and Twitter @BritishWireless

Registered Charity Number : 1078287 Scottish Charity Number : SC041582

Barth Syndome Trust

Barth Syndrome Trust

Website: https://www.barthsyndrome.org.uk/index.php

Email via contact form: BST Email Contact Form

Telephone: 01794 518 785

Address: Barth Syndrome Trust, 1 The Vikings, Romsey, Hampshire SO51 5RG

Barthe Syndrome is a rare genetic disorder that mainly affects boys.

Barth syndrome is a rare, often life-threatening genetic disorder that affects boys.  Look at our logo and you’ll see a heart at its centre: this is because most of our boys have heart failure and a risk of sudden cardiac arrest.  However, the heart at the centre is also a powerful symbol of who we are as an organisation: we are a strong, caring and positive force.

The swirl around the heart encompasses the many symptoms which are caused by Barth syndrome – immune system problems, muscle weakness, extreme and debilitating fatigue, growth delay and feeding problems.  But again, our swirl means more to us than just a collection of symptoms – for us it symbolizes unity, collaboration and inclusion.

Main symptoms:

  • Heart muscle weakness (cardiomyopathy)
  • Neutropenia (lack of white blood cells needed to fight bacterial infections)
  • Fatigue and general muscle weakness
  • Growth/feeding issues

The Barth Syndrome Trust is a well-established community of families, medical professionals, scientists, donors and volunteers with links to other affiliates all around the world.  We provide the most comprehensive source of reliable and current information about this condition and we invite you to visit our pages to find the information you seek.

We are dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome – a sometimes fatal, often debilitating genetic disease.

 Working together we are making a difference in the lives of children and their families. One day there will be a cure; please join us and help us make that day come sooner. Find out more on our website. https://www.barthsyndrome.org.uk/index.php

Find us on Face Book and Twitter.

Registered Charity No:1100835