Macular-Society

Breaking news: Harley Street eye surgeon struck off

Shropshire Disability Network have been asked to share a letter from the CEO of Macular Society and printed below. If any of our members or readers have been affected, please contact Macular Society using the details at the end of the letter. Thank you.

Dear Pauline,

I am writing to let you know that Bobby Qureshi, the Harley Street ophthalmologist who lied to patients with age-related macular degeneration (AMD) about being able to restore their sight, has been struck off by the General Medical Council (GMC).

Some of you will know that in 2017 the Macular Society submitted a complaint to the GMC, having received more than 50 telephone calls to our Advice & Information Service about Mr Qureshi. He had carried out operations on dozens of patients, implanting his patented lenses at huge expense to those patients, with false claims that their vision would be significantly improved.

 

The findings of the GMC were that Mr Qureshi repeatedly and deliberately misled patients about the benefits of his lens implants, charging them many thousands of pounds, knowing full well that he could not restore their sight.

It has been deeply distressing and shocking to discover that a doctor could exploit vulnerable people who were desperate to save their sight, compromising their safety and wellbeing for his own profit. Mr Qureshi’s patients were willing to part with their life savings because they – understandably – believed his claims that he could restore their sight.

I urge anyone who is considering undergoing any new treatment which claims to reverse the effects of macular disease to speak to their own macular specialist, or contact our Advice & Information Service to check that it is safe.

We still don’t know how useful lens implants might be – and that is why it is imperative that more research is funded. Thanks to your support, the Macular Society is able to fund a clinical trial starting later this year in Northern Ireland which will test a new type of implanted magnifying lens for people with advanced macular disease.

I want to thank the brave families who came forward and spoke to the Macular Society about Mr Qureshi, those who gave evidence at the hearing – your courage under these heart breaking circumstances is truly admirable, and you have helped to stop Mr Qureshi from causing any further damage to people’s lives.

With my best wishes,

Cathy Yelf
CEO, Macular Society

P.S. If you have been affected and would like support please call our Advice & Information Service on 0300 3030 111 or email [email protected]

 

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Shropshire Disability Network Management Committee Nominations

Shropshire Disability Network Annual General Meeting and Members’ Meeting will be held on Thursday, 5th September 2019 at University Centre, Guildhall, Frankwell Quay, Shrewsbury, Shropshire, SY3 8HQ

There are various elections that need to take place at that meeting i.e. Chair, Deputy Chair, Secretary, Deputy Secretary.  Members also need to be elected to the SDN Management Committee.

If you would like to be elected or you would like to nominate someone (please seek permission first), please complete and return the nomination form below.

SDN holds its Management meetings on the first Thursday in February, April, May, July, August, October and November of each year.  There are no meetings in the same month as Members’ Meetings.

Over the last 11 years SDN has grown and it may be that we need to look at whether it is feasible to continue to hold every Management Meeting from 10.30 am to 12.30 pm, or whether it should be a mix of morning and evening meetings.  If your current work prevents you attending meetings during the day, we would ask that you continue to complete and return the nomination form to us, indicating that you would like meeting times to be varied.

Click here to download a nomination form: SDN Nomination Form 2019

Click here for further details of our meeting on Thursday 5th September 2019 https://shropshiredisability.net/shropshire-disability-network-meeting-4/

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Telford & Wrekin -Making It Real

Telford & Wrekin Council have opportunities available for people to be part of “Making It Real”

What is Making it Real?

Making It Real is a framework or guide that sets out what good, person-focused care and support should look like from the point of view of individuals with lived experience. It recognises that people want a life, not just a service and that conversations with people should be based on what matters most to them. Support must be built up around a person’s strengths, their own networks of support and greater use made of resources available in the local community.

About Making It Real in Telford:

Telford, Making It Real Board was set up in January 2018 and is made up of people who use adult services or who are interested in the development of Adult Social Care (ASC) in Telford and Wrekin. The Board works in co-production with council leaders, making recommendations on how different service areas can improve and develop, with the aim of seeing services progress towards more person-centred, community-based support.

Experts by experience

As ‘Experts by Experience’ the Board is uniquely placed to ensure that council leaders are kept in touch with the day to day realities for people who use services and their carers and that local people are placed at the heart of decisions around the future of Adult Social Care in the borough.

Get involved and have your say

Telford and Wrekin Council would like people who use Adult Social Care to work with them ensuring that those who have lived experience are heard, valued and that they have the opportunity to inform, question and challenge our developments and practice. The Making It Real board meetings will take place on:

  • Thursday 12 September 2019 from 2 pm – 4 pm at Ketley Community Centre
  • Thursday 17 October 2019 from 2 pm – 4 pm at Ketley Community Centre
  • Thursday 14 November 2019 from 2 pm – 4 pm at Ketley Community Centre
  • Thursday 12 December 2019 from 2 pm – 4 pm at Ketley Community Centre.

How to Contact Making It Real

Contact: Kate Parslow Telephone: 01952 380839, Email: [email protected]

Address: For the attention of: Kate Parslow, Adult Social Care, Making It Real Board
Telford & Wrekin Council, 4th floor, B wing, Darby House, Lawn Central, Telford, TF3 4JA.

Making it Real

Shropshire Adult Social Care, Local Account 2018-2019

Each year, Shropshire Council produce a magazine about social care. This edition has true stories from real life people about what’s worked for them and what hasn’t. You will also find information on prevention, fraud, carers and a lot more. Download your copy at the link below.

Download a copy of Making it Real here:  local-account-2019

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Your Voice July-August 2019

This summer edition of Your Voice features special invitations for Shropshire Disability Network members, a debate over disability access in Shrewsbury, and much more. It also features opportunities to steer SDN, as a powerful collective voice for people with disabilities and carers across the county.

Don’t miss your invitation to join in with the friendly Telford Eagles Sitting Volleyball Team or to discover the plant- and wildlife of the beautiful Bridgnorth Cemetery with Caring for God’s Acre. Accessible nature is the topic of the keynote speech at SDN’s AGM, to which you are also warmly invited.

Ahead of the AGM, you are encouraged to consider how you or someone you know might help to take SDN to the next level!

This message of appreciation, which SDN received recently, reminds us why we do what we do:

“It is services like yours which help my elderly parents, who despite their long-term conditions are still fiercely independent, to cope in their own home. Many thanks for your assistance. Keep up the good work!”

Log in to the Members’ Area at the top right-hand side of this page, and then download your copy of Your Voice by clicking on the link below. If you have any feedback or suggestions, please email [email protected] . We would love to receive your comments or ideas.

Your Voice July-August 2019

This edition of Your Voice refers to the role descriptions for Chair and Secretary of SDN and the nomination form for places on SDN’s Management Committee. To download these documents, please follow these links:

https://shropshiredisability.net/have-you-the-skills-to-be-our-next-chair-or-secretary/

https://shropshiredisability.net/shropshire-disability-network-management-committee-nominations/

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Review of “A” Boards on footways and public highway

Shropshire Council are currently reviewing their Policy and processes regarding the placement of ‘A’ boards (advertising boards primarily for promoting local businesses) on footways and areas of public highway. Premises are allowed no more than 2 “A” Boards directly outside their property.

Shropshire Disability Network has been approached and invited to give a response to Shropshire Council by Saturday 31st August but so that we can do that we need your help. Please would you answer the questions below:

You can use “Add Your Answer” if you wish to comment briefly

Currently businesses are allowed 2 "A" Boards close to their premises. Is this too many?
Do "A" Boards present a problem for you?
"A" Boards present no problem for me but they do for others
I have no trouble with "A" Boards on pavements
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Shropshire Disability Network Management Committee Nominations

Shropshire Disability Network Annual General Meeting and Members’ Meeting will be held on Thursday, 5th September 2019 at University Centre, Guildhall, Frankwell Quay, Shrewsbury, Shropshire, SY3 8HQ

There are various elections that need to take place at that meeting i.e. Chair, Deputy Chair, Secretary, Deputy Secretary.  Members also need to be elected to the SDN Management Committee.

If you would like to be elected or you would like to nominate someone (please seek permission first), please complete and return the nomination form below.

SDN holds its Management meetings on the first Thursday in February, April, May, July, August, October and November of each year.  There are no meetings in the same month as Members’ Meetings.

Over the last 11 years SDN has grown and it may be that we need to look at whether it is feasible to continue to hold every Management Meeting from 10.30 am to 12.30 pm, or whether it should be a mix of morning and evening meetings.  If your current work prevents you attending meetings during the day, we would ask that you continue to complete and return the nomination form to us, indicating that you would like meeting times to be varied.

 Click here to download a nomination form: SDN Nomination Form 2019

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Have you the skills to be our next Chair or Secretary?

Shropshire Disability Network, our charity is run entirely by volunteers.  We are committed to improving the experiences of people living with disabilities, their carers and families. We cover the county of Shropshire, including the Telford & Wrekin area.

At our Annual General Meeting (AGM) in September we election people to serve on our Management Committee and have the following vacancies to fill. Chair and Secretary as well as deputies.

Click here for-Description of the role of Chair: Chair advert (3)

Click here for-Description of role of Secretary: Secretary advert (1)

If you would like to take on either the above roles, or know someone who may be willing to be the next Chair or Secretary of our growing charity, please let us know. 

Volunteering increases self-confidence.  If you have a desire to bring change for people with any kind of disability or their carers and families and to help them find a voice, this role will help provide support for these people.  Our volunteers have found that their efforts for Shropshire Disability Network have given them a sense of accomplishment as well as pride and identity.

If you would like to know more, please contact either Ruby Hartshorn on 07780 852 229 or Ann Shaw on 07970 816 030.  Or email [email protected]or [email protected]

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SDN, Your Charity Needs You!

Shropshire Disability Network is run in its entirety by Volunteers and without people giving of their time, our charity would not exist.

We appreciate all who volunteer for us, whether it is one hour a week or occasional help at Awareness Days and Bucket Collections etc, writing an article for our website and/or newsletter or serving on our Management Committee or working behind the scenes enabling SDN to be the place for disability information in Shropshire as well as helping give disabled people and carers in Shropshire a voice.

SDN will not be able to sustain its work or continue to grow without members/people coming forward to take up volunteer roles. 

We have several opportunities available, here are a few.

A-Z Listing of Useful Organisations: Our listing of over 700 local and national organisations is an important resource, used by many people, professionals and organisations. People visit as they are seeking much needed information for those in the region living with disabilities as well as their families and carers. 

We are looking for a volunteer, who will keep this directory up to date ie check information is current, website links work and logos are correct etc . The volunteer will need to be able to work methodically. Training will be given. For the right applicant this could be a very rewarding opportunity. If you think this is something you could do, you will be helping SDN and the wider Community.

Events: We offer the opportunity to have events listed on our website. This is one of our most popular website pages https://shropshiredisability.net/events/ It is always helpful when people use our easy fill form, at this link https://shropshiredisability.net/submit-an-event/ as we can then verify and authorise publication. Using the form is the quickest way to get your event publicised and by using it, you help save our Webmaster, Chair and Secretary time as you know your event better than us. While we would prefer people to use the form at the link above, we are looking for one or two people who would be willing to complete and submit forms to us. Training will be available.

Website: We do not need programmers! We would like to hear from anyone who would be interested in overseeing our website, with a view to taking on the role of webmaster. We would also like one or two people who we can train to upload information onto our website. A little creativity and an eye for what makes a good picture now and again otherwise this is perfect for somebody who likes to spend a little time on line.

Why Volunteer? Volunteering for SDN can help you in many ways by building confidence that has often been lost through having the added difficulties in life of having a disability. Some Volunteers tell us, they find it enjoyable and fulfilling but also have become part of a new family. Some people start to volunteer as a way to get back into employment. If you would like to volunteer for a good local charity, we would like to hear from you.

If you would be interested in volunteering for any of the above, please email [email protected] or complete this form https://shropshiredisability.net/contact/ or for an informal chat please call SDN on 07780 852229 (answerphone available)

Note: SDN will request References. We do offer necessary out of pocket expenses.