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Christmas Cards to support your Charity.

Shrewsbury Charity Christmas Card shop at St. Mary’s Church, Shrewsbury is now closed for 2019 but we still have a supply of cards available to buy. SDN thanks our volunteers who took a slot to staff the shop while it was open and to all who purchased our cards. All profits from sales will be divided equally between Shropshire Disability Network and Safe Place Shropshire. May be you already have your cards for this year, but you can always buy for 2020.

This year we have this lovely photograph taken by SDN member Ellie Forrester. Many of you will know Ellie from reading her blogs on wildlife and her work with Caring for God’s Acre and Shropshire Wildlife Trust. Each pack of cards cost 3.99 for 10 cards and envelopes.

The verse inside this card reads “Merry Christmas and a Happy New Year”

SDN Christmas Card

We also have last years design still available, ask us about our reduced packs of cards. For further information, please email [email protected] or call/text 07780 852229

Christmas Card 2018 a

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Your Voice Christmas 2019

Accessible church services leading up to Christmas, accessible films and pantomimes, and Shropshire Disability Network’s own Christmas meeting – they all feature in this edition of Your Voice.

Find out, too, about the progress of the Safe Places Shropshire scheme, a new caring initiative in North Shropshire, and the next open day at Derwen College, whose vision is ‘a world without barriers for people with special educational needs and disabilities’.

There is also information about the work of National Trading Standards’ Illegal Money Lending Team to stop loan sharks, the help available from Citizens Advice to claim Universal Credit, and more.

Log in to the Members’ Area at the top right-hand side of this page, and then download your copy of Your Voice by clicking on the link below. If you have any feedback or suggestions, please email [email protected] . We would love to receive your comments or ideas.

Your Voice Christmas 2019

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Shropshire Disability Network Meeting

SDN Management Committee look forward to welcoming you to our meeting on Thursday 12th December, 10.30 am -11 am at The Telford Whitehouse Hotel, Watling Street, Wellington, Telford TF1 2NJ networking and refreshments before the meeting starts at 11 am.

We look forward to welcoming guest speakers: They are:

  • Nikki Barden-Shropshire Dystonia Group
  • Paul Bryce-Advocate for disabilities

Raffle: We will hold our regular quarterly raffle to help meet costs.

Some of us like to get into the festive season by wearing Christmas Jumpers so if that is you, we would love to see them.

Other items to buy: We will have SDN wrist bands for sale, this i s a good way to raise awareness of SDN. You will also have opportunity to purchase our 10th Anniversary Badges at £1 each as well as a Safe Place Shropshire Badge at £1 each. By buying these you help us to fund our work. We will also have a table where you can buy items made by our members as well as other items. They are all very reasonably priced and will help towards paying for our meeting.

Email: [email protected] (Secretary) or call or text 07780 52229 for more information.

Click here for a list of events 2019: SDN-Dates-Events-Oct+ 2019-Master

We have Sign Language Interpreters (BSL) at all our meetings. We now have a t-loop system to use at our meetings

 

Caring for Gods Acre

Churchyards for All (an open invitation to everyone)

A message from Revd Dr David Primrose, transforming church and community enabler, to invite everyone to a workshop  about making churchyards/churches accessible to all.

The day (Monday 25th November 2019 10 am- 3 pm at St Giles’s Church, Wenlock Road, Shrewsbury, SY2 6JP) will be led by Rev’d Dr David Primrose, transforming church and community enabler.

The Venue is the Fellowship Room located in the churchyard just to the left of the Church Building, (and not the Church Hall which is on Sutton Way).

Please bring your own lunch – tea and coffee will be provided, along with some soup at lunch. Some of the time we will be in the Fellowship Room, which has an accessible toilet. Some of the time we will be in the churchyard, so bring suitable outdoor clothing.

Participants include:

  • Ellie Forrester, Ruby Hartshorn and Ann Shaw and other members of Shropshire Disability Network
  • Harriet, Andrea, George, & Anna from CfGA
  • Zoe Heming – Diocesan Disability Advisor
  • Andy Knight – vicar of St Giles
  • Giles Standing – Lichfield DAC
  • Matthew Parker – Archdeacon of Stoke
  • (Sue Weller) – Archdeacon of Lichfield
  • Alison Primrose – Lichfield Churchyard Awards Scheme
  • David Primrose – Diocesan Transforming Church and Communities Enabler
  • Mark Betson – Church of England Rural Officer
  • Huw Andrews – Ecclesiastical Insurance, Risk Management Consultant

For further information, please contact David via the office number 01543 622591 

 

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Your Voice Autumn 2019

Welcome to the Autumn edition of Your Voice!

This edition highlights the valuable work of Shropshire Disability Network (SDN) members – Headway Shropshire, Shropshire ME Group, and the local branch of the National Ankylosing Spondylitis Society (NASS).

It also introduces SDN’s new Chair, brings news of activities for you, including an Accessible Churchyards Workshop in Shrewsbury and SDN’s Christmas Members’ Meeting in Wellington, and plenty more!

Log in to the Members’ Area at the top right-hand side of this page, and then download your copy of Your Voice by clicking on the link below. If you have any feedback or suggestions, please email [email protected] . We would love to receive your comments or ideas.

Your Voice Autumn 2019

Macular-Society

Breaking news: Harley Street eye surgeon struck off

Shropshire Disability Network have been asked to share a letter from the CEO of Macular Society and printed below. If any of our members or readers have been affected, please contact Macular Society using the details at the end of the letter. Thank you.

Dear Pauline,

I am writing to let you know that Bobby Qureshi, the Harley Street ophthalmologist who lied to patients with age-related macular degeneration (AMD) about being able to restore their sight, has been struck off by the General Medical Council (GMC).

Some of you will know that in 2017 the Macular Society submitted a complaint to the GMC, having received more than 50 telephone calls to our Advice & Information Service about Mr Qureshi. He had carried out operations on dozens of patients, implanting his patented lenses at huge expense to those patients, with false claims that their vision would be significantly improved.

 

The findings of the GMC were that Mr Qureshi repeatedly and deliberately misled patients about the benefits of his lens implants, charging them many thousands of pounds, knowing full well that he could not restore their sight.

It has been deeply distressing and shocking to discover that a doctor could exploit vulnerable people who were desperate to save their sight, compromising their safety and wellbeing for his own profit. Mr Qureshi’s patients were willing to part with their life savings because they – understandably – believed his claims that he could restore their sight.

I urge anyone who is considering undergoing any new treatment which claims to reverse the effects of macular disease to speak to their own macular specialist, or contact our Advice & Information Service to check that it is safe.

We still don’t know how useful lens implants might be – and that is why it is imperative that more research is funded. Thanks to your support, the Macular Society is able to fund a clinical trial starting later this year in Northern Ireland which will test a new type of implanted magnifying lens for people with advanced macular disease.

I want to thank the brave families who came forward and spoke to the Macular Society about Mr Qureshi, those who gave evidence at the hearing – your courage under these heart breaking circumstances is truly admirable, and you have helped to stop Mr Qureshi from causing any further damage to people’s lives.

With my best wishes,

Cathy Yelf
CEO, Macular Society

P.S. If you have been affected and would like support please call our Advice & Information Service on 0300 3030 111 or email [email protected]

 

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Shropshire Disability Network Management Committee Nominations

Shropshire Disability Network Annual General Meeting and Members’ Meeting will be held on Thursday, 5th September 2019 at University Centre, Guildhall, Frankwell Quay, Shrewsbury, Shropshire, SY3 8HQ

There are various elections that need to take place at that meeting i.e. Chair, Deputy Chair, Secretary, Deputy Secretary.  Members also need to be elected to the SDN Management Committee.

If you would like to be elected or you would like to nominate someone (please seek permission first), please complete and return the nomination form below.

SDN holds its Management meetings on the first Thursday in February, April, May, July, August, October and November of each year.  There are no meetings in the same month as Members’ Meetings.

Over the last 11 years SDN has grown and it may be that we need to look at whether it is feasible to continue to hold every Management Meeting from 10.30 am to 12.30 pm, or whether it should be a mix of morning and evening meetings.  If your current work prevents you attending meetings during the day, we would ask that you continue to complete and return the nomination form to us, indicating that you would like meeting times to be varied.

Click here to download a nomination form: SDN Nomination Form 2019

Click here for further details of our meeting on Thursday 5th September 2019 https://shropshiredisability.net/shropshire-disability-network-meeting-4/

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Telford & Wrekin -Making It Real

Telford & Wrekin Council have opportunities available for people to be part of “Making It Real”

What is Making it Real?

Making It Real is a framework or guide that sets out what good, person-focused care and support should look like from the point of view of individuals with lived experience. It recognises that people want a life, not just a service and that conversations with people should be based on what matters most to them. Support must be built up around a person’s strengths, their own networks of support and greater use made of resources available in the local community.

About Making It Real in Telford:

Telford, Making It Real Board was set up in January 2018 and is made up of people who use adult services or who are interested in the development of Adult Social Care (ASC) in Telford and Wrekin. The Board works in co-production with council leaders, making recommendations on how different service areas can improve and develop, with the aim of seeing services progress towards more person-centred, community-based support.

Experts by experience

As ‘Experts by Experience’ the Board is uniquely placed to ensure that council leaders are kept in touch with the day to day realities for people who use services and their carers and that local people are placed at the heart of decisions around the future of Adult Social Care in the borough.

Get involved and have your say

Telford and Wrekin Council would like people who use Adult Social Care to work with them ensuring that those who have lived experience are heard, valued and that they have the opportunity to inform, question and challenge our developments and practice. The Making It Real board meetings will take place on:

  • Thursday 12 September 2019 from 2 pm – 4 pm at Ketley Community Centre
  • Thursday 17 October 2019 from 2 pm – 4 pm at Ketley Community Centre
  • Thursday 14 November 2019 from 2 pm – 4 pm at Ketley Community Centre
  • Thursday 12 December 2019 from 2 pm – 4 pm at Ketley Community Centre.

How to Contact Making It Real

Contact: Kate Parslow Telephone: 01952 380839, Email: [email protected]

Address: For the attention of: Kate Parslow, Adult Social Care, Making It Real Board
Telford & Wrekin Council, 4th floor, B wing, Darby House, Lawn Central, Telford, TF3 4JA.

Making it Real

Shropshire Adult Social Care, Local Account 2018-2019

Each year, Shropshire Council produce a magazine about social care. This edition has true stories from real life people about what’s worked for them and what hasn’t. You will also find information on prevention, fraud, carers and a lot more. Download your copy at the link below.

Download a copy of Making it Real here:  local-account-2019