Cystic Fibrosis Trust

Cystic Fibrosis Trust

Website: https://www.cysticfibrosis.org.uk/

Email: [email protected]

Email Helpline: [email protected] 

Telephone: 020 3795 1555

Helpline:  0300 373 1000 or 020 3795 2184 (Open- Monday, Wednesday, Friday 9.30 am-1.30 pm and Tuesday and Thursday 9.30 am-4.30 pm)

Address: Cystic Fibrosis Trust, One Aldgate,Second Floor,London EC3N 1RE

We are working towards a brighter future for everyone with cystic fibrosis (CF) by funding research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.

Cystic fibrosis (CF) is a life-limiting condition that makes it difficult to breathe, this causes vulnerability and infection and restricts your ability to fulfill your ambitions. Medication, physiotherapy and general health all have to be taken into account when planning the simplest activity, and being unwell frequently interferes with work and education. This is why we are fighting to overcome all those hurdles – and more!

We have a Helpline where we can be contacted by telephone or email. (see above) We have a forum that you can join as well as a newsletter. Our website has a lot of information about CF, publications and information to help you.

 Find us on Face Book @cftrust and Twitter @cftrust

Registered Charity England and Wales 1079049, Registered Charity No. (Scotland) SC040196

 

Autism UK

Autism Independent UK

Website: https://www.autismuk.com/

Email: [email protected]

Telephone: 01536 523274

Address: 199-203 Blandford Ave, Kettering, Northants. NN16 9AT

Autism Independent UK helps to increase awareness of autism and bring it to the notice of all. They also inform on newly developed approaches in the diagnosis, assessment, education and treatment.

The main goal is to improve the quality of life for persons with Autism and by doing so, giving them a chance to take their rightful place within their local community where they can live, work and play.

 

Find us on Face Book

Registered Charity Number 803003

Stroke Assn 250-253

Wrexham and District Stroke Club

Website: https://www.stroke.org.uk/finding-support/wrexham-and-district-stroke-club

Email: N/A

Telephone: 01978 359373

Address: Cuncliffe Centre, 65 Rhosddu Road, Wrexham LL11 3NW

The Wrexham & District Stroke Club has been supporting those touched by stroke for over 30 years.This is a stroke group affiliated to the Stroke Association that offers peer support and talks with speakers as well as activities including outings, meals, games and quizzes.

The group meets on alternate Wednesday’s from 7 pm-8 pm. Please get in touch with Mr Gwyndaf Owen on 01978 359373 for further information.

 

Find us on Face Book and Twitter

CICS

CICS (Cochlear Implant Children’s Support Service)

Website: https://www.cicsgroup.org.uk/

Email: [email protected]

Contact Form: https://www.cicsgroup.org.uk/cics-group/contact/

Telephone: 020 8876 8605

Telephone: Angela O’Donovan (Midlands Coordinator) 07830 345023

Address: CICS PO Box 28843, London, SW13 0WY

CICS is an independent, voluntary group run by parents whose children have cochlear implants to help others whose children already have implants and those who are considering cochlear implantation for their child whether unilateral, simultaneous or sequential bilateral.

We offer first-hand experience of the difference that cochlear implantation can make to the lives of deaf children and their families. We can help with issues that surround life with an implanted child to provide a vital part of the pre and post implantation process – support for parents by parents.

What we do

  • Offer contact, information and support based on first-hand experience
  • Put families in touch with others who have relevant experiences to share, eg cause of deafness, additional needs, method of communication, educational provision
  • Provide a quarterly newsletter
  • Organise a regular information day
  • Arrange social events for the whole family
  • Organise activity weekends
  • Host a members’ Facebook page
  • Liaise with other organisations helping deaf children
  • Provide links with other groups as well as adult CI users and some overseas families
  • Raise awareness of cochlear implants
  • Take part in campaigns and research

 

Find us on Face Book and Twitter

Registered Charity Number 1097619

Combat Stress

Combat Stress

Website: https://www.combatstress.org.uk/

Email: [email protected]

Telephone:  01372 587 000

Address: Head Office, Combat Stress, Tyrwhitt House, Oaklawn Road, Leatherhead, Surrey KT22 0BX

NB: If you’re a veteran, service personnel in need of help, or if you know someone who you think needs help, contact us any time on our free Helpline, text or email:

Helpline: 0800 138 1619

Helpline Text: 07537 404719

Helpline Email: [email protected]

We are Combat Stress, the UK’s leading charity for veterans’ mental health. For a century, we’ve helped former servicemen and women with mental health problems such as anxiety, depression and post-traumatic stress disorder (PTSD). The work we do is life-changing and often life-saving. 

We offer a range of treatment services in the community, at our specialist centres, on the phone and online, and we develop a personalised programme for each veteran’s individual needs. Combat Stress provides the UK’s only residential treatment for veterans with trauma-related mental health problems. Highly trained staff have specialist knowledge of veteran trauma. Our unique combination of psychological and psychiatric treatment, and occupational therapy benefits the most unwell veterans.

Our vision
Our vision is for all former servicemen and women with mental health problems to live full and meaningful lives.

Our mission
Our mission is to provide support and treatment to veterans with mental health problems to help them tackle the past and take on the future.

 

Find us on Face Book  @CombatStress and Twitter @CombatStress

Registered Charity Number in England & Wales No 256353. Charity Registration No 206002 (SC038828 in Scotland)

Cerebra

Cerebra (working wonders for children with brain conditions)

Websitehttps://www.cerebra.org.uk/

Email: [email protected]

Telephone: 01267 244200

Freephone:  0800 3281159

Address: Cerebra, 2nd Floor Offices, The Lyric Buildings, King Street, Carmarthen, SA31 1BD

Parent Support Contact Details:

Email: [email protected]
Helpline
(Freephone): 0800 328 1159

Address: Freepost Address Cerebra (Parent Support), FREEPOST SWC3360, Carmarthen SA31 1ZY

 What we do:

  • We can help you get the answers to questions about your child’s condition with our range of books on topics relating to brain conditions. Or your child could discover a new favourite sound, sight or smell with one of the switch toys, fibre optics or sensory kits from our sensory toy library.
  • If you live in the UK and care for a child aged 16 or under with a brain condition you can join our postal lending library.
  • We can help you with your rights ie finding legal advice, letter templates and more.
  • We can give advice on sleep. We understand how difficult it can be to get a good night’s sleep so we have a team of sleep practitioners who can give you advice and guidance.
  • Guides for Parents We have a section on our section containing Cerebra’s guides for parents.

Click here for Cerebra’s guides guide for parents: https://www.cerebra.org.uk/help-and-information/guides-for-parents/

 

Find us on Face Book and Twitter @CerebraUK

 

Registered Charity Number 1089812

 

CCAA

CCAA (kids with arthritis)

Website: https://www.ccaa.org.uk/

Email:  [email protected]

Contact Form: https://www.ccaa.org.uk/contact-us/

Telephone: 01242 511250

Address: CCAA, PO Box 1281, Cheltenham, GL50 9AG 

We actively raise awareness of childhood Arthritis in the community through fundraising and events nationwide. Our website has a wealth of information on living with Juvenile Idiopathic Arthritis (JIA), you can read stories of other sufferers and about various treatments.

We are incorporated with JIA Matters, a network of parent-led local groups run by volunteer parent reps. If your child would like to meet other children living with the same condition and/or you would like to meet other parents, get in touch and we will help connect you. 

To find your local group, click here: https://jiamatters.org/midlands/

 

Find us on Face Book  and Twitter @CCAA_org

Registered Charity Number

TheCarer

Website: http://www.thecarer.co.uk/

Email: [email protected]

Telephone: N/A 

Address: TheCarer, Daresbury Point, Green Wood Drive, Manor Park, Cheshire WA7 1UP

TheCarer was formed to offer a unique reference point on the practicalities and emotional needs of caring.The Carer is an informative website and provides information and advice on caring for someone close to you.

It covers all aspects of life as a carer, such as money matters ie claiming carers allowance, emotional and health matters, finding help and support and who to contact for respite as well as caring for siblings. It also covers caring for a neighbour, and becoming a foster carer.

 

Find us on Face Book and Twitter

DM UK

DM UK (Disabled Motoring UK)

Website: https://www.disabledmotoring.org/

Email: [email protected]

Contact Form: https://www.disabledmotoring.org/contact/contact-us

Telephone: 01508 489 449

Address: National Headquarters, Ashwellthorpe, Norwich NR16 1EX

Disabled Motoring UK is the only charity in the UK that represents the interests of Blue Badge holders and disabled motorists at a national level. To lend your voice to our campaigns, support us through the Online membership or join us as a Full/Associate member.

We work with government and businesses across the UK in order to improve parking, refuelling, and access provision for disabled people, so that they can access the goods and services that they need.

DM UK has a membership fee but you can join on line with no fee and you can still access campaigns and some other information.

 

Find us on Face Book   and Twitter @DisMotoringUK

Registered Charity Number 1111826

My-Life-My-Choice

Sensory Inclusion Service (SIS) -children and young people.Telford

Website: https://telford.mylifeportal.co.uk/directory/providerdetails/209354

Email: [email protected] 

Telephone: 01952 385269

Address: Darby House, Lawn Central, Telford, TF3 4JA

Sensory Inclusion Service (SIS) supports children and young people with hearing and/or visual difficulties and their families.  They provide a wide range of support to ensure children and young people have a good quality of life, achieve their academic potential and are included in their local community. This is for the Telford area.

 

Find us on Face Book and Twitter