BBS UK (Bardet-Biedl Syndrome UK)


Email: [email protected] or for BBS UK Support Officer: Birmingham Service [email protected]

Telephone: 07591 206787 (Amy Clapp BBS UK Support Officer: Birmingham Service)

Bardet-Biedl Syndrome UK is the only registered charity supporting people with Bardet-Biedl Syndrome, their families and carers. The aims of the Charity, according to its constitution, are: to preserve and protect the health and promote the welfare of persons living with BBS, and to advance the education of the medical and educational professionals and the general public on the subject of BBS.

For information regarding the clinical features of BBS, click here for our information booklets

All members of the Management Committee are volunteers. They have children with BBS or have the syndrome themselves, and they willingly give up their time to provide support, raise funds and generally do as much as they can to keep the Charity moving forwards.


The Charity produces newsletters,  conference reports, holds an annual family conference, and is an integral member of the specially commissioned multi-disciplinary BBS Clinics. Awareness of the Syndrome has grown massively as a result and the Charity now supports over 500 families and communicates with over 130 professionals involved in their care.


There are no membership fees and no charges are made for information – the work of the Charity relies entirely on donations.


Find us on Face Book  @BBS UK1 and Twitter @BBS UK1

Registered Charity Number 1027384 and SCO41839

Zebra Access

Zebra Access


Email: [email protected]

Contact Form:

Telephone: 01902 421919

Address: Zebra Access, Creative Industries Centre, Wolverhampton Science Park, Glaisher Dr, Wolverhampton WV10 9TG

Zebra Access is a Deaf-led charity dedicated to ensuring that all Deaf and Hard of Hearing people enjoy equal participation and access without communication barriers.

We aim to provide Deaf role models, enabling Deaf and Hard of Hearing people to have self belief and confidence to achieve their aspirations by breaking down barriers. We provide services to support Deaf and Hard of Hearing individuals along with a variety of events, clubs and activities. We also deliver Deaf Awareness and BSL training to organisations and individuals who work with Deaf and Hard of Hearing communities and individuals.


Find us on Face Book @zebraacess and Twitter @ZebraAccess

Registered Charity Number 1149181

OHNI Trust

OHMI (Enabling Music Making for the Physically Disabled)


Email: [email protected]

Telephone: N/A

Address: The OHMI Trust, 29 Woodbourne Road, Harborne, Birmingham  B17 8BY

The OHMI Trust is a UK-based charity pioneering the development and adaptation of musical instruments for people who are physically disabled.

Our objective is to remove the barriers to music making faced by physically disabled people, and to enable undifferentiated participation in musical life, whether at school, in the home or in a professional ensemble.

There are four elements to our work:

  • The acquisition of instruments through our international competition
  • Music Makers - our teaching support programme
  • Research into music education, instrument design, instrument manufacture, and social issues
  • Making instruments available through a national hire scheme

Find us on Face Book @TheOHMITrust2016 and Twitter @TheOHMITrust

Registered Charity Number 1143623



Hearing Dogs UK


Email: [email protected]

Telephone: 01844 348 100

Text relay: 18001 01844 348100 (for deaf & hard of hearing)

Address: The Grange, Wycombe Road, Saunderton, Princes Risborough, Buckinghamshire HP279NS

We train hearing dogs that help deaf people to leave loneliness behind. We train dogs to alert deaf people to sounds they would otherwise miss – simple sounds that many people take for granted like the doorbell, alarm clock and even danger signals like the fire alarm. Being aware of these – thanks to a hearing dog – makes a real difference to deaf people’s lives. 

Hearing dogs have saved countless lives in their important role; fire alarms sounding at the dead of night, alerting them to the shouts of a loved one who is in peril, even saving their recipients from potential car thieves!


Find us on Face Book @Hearing.Dogs and Twitter @HearingDogs

Registered Charity Number England and Wales no. 293358 and in Scotland no. SC040486

Clothing Solutions

Clothing Solutions for disabled people


Email:  N/A

Contact Form:

Telephone: 01274 292291

Address: Unit 13, Inspire Bradford Business Park, Newlands Way, Bradford, West Yorkshire, BD10 0JE

Clothing Solutions for Disabled People is a registered charity based in West Yorkshire. We are a unique service that alters and creates bespoke clothing for disabled people to establish a better quality of life.

We offer a comprehensive clothing service to people who, for reasons of shape, size, proportion, mobility difficulties or learning disabilities, find it difficult to source appropriate and affordable clothing from retail outlets. Our made to measure garments or alterations to an existing garment aim to meet the specific needs of the individual.

Where made to measure garments are required each customer will be consulted on design, colour and fabric choice. Measurements are taken and each garment fitted if necessary before completion. A postal service is available, as well as telephone and email consultations for those who live further away from the service.


Find us on Face Book @clothingsolutionsdp and Twitter @clothingsdp

Registered Charity Number 1120118 

Britsh Deaf News

British Deaf News


Email: N/A

Contact Form:

Telephone: 020 7697 4140 SMS / FaceTime: 07795 410 724

Address: British Deaf News Team, C/o British Deaf Association, 3rd Floor, 356 Holloway Road, London N7 6PA

British Deaf News is an online magazine for the deaf community from the British Deaf Association. On the website you will be able to access news, blogs, a host of useful information ie Sport, Lifestyle, Arts, Deaf Clubs, Entertainment, Campaigns  and more.


Find us on Face Book @BritishDeafNews and Twitter @BritishDeafNews

Registered Charity Number


Revitalise (Respite Holidays for disabled people and carers)


Email: [email protected]

Contact Form:

Telephone: 0303 303 0145

Address: Revitalise, Unit 212 Business Design Centre, 52 Upper Street, London N1 0QH

Revitalise is a national charity providing respite care in a holiday setting for disabled people and carers for over 50 years. Revitalise also offers inspirational opportunities for volunteers through one of the largest and most diverse volunteering programmes of any UK charity.

Revitalise was founded in 1963 as the Winged Fellowship Trust (WFT). In 2004 WFT became Vitalise and in 2014 Vitalise became Revitalise.

We currently run three accessible holiday centres in Chigwell in Essex, Southampton and Southport.

Our mission is to enable disabled people in the UK to access essential breaks with care, and provide inspirational opportunities for volunteers.

We firmly believe that disabled people should have the same rights, freedoms, responsibilities and quality of life as those without disabilities.



Find us on Face Book @revitisecharity and Twitter @RevitaliseNow

Registered Charity Number 295072


R.A.D.A.R Key Company (The)

Email: [email protected]
Telephone: 01395 265543 (Monday-Friday 9 am-5 pm) Fax: 01395 222088
Address:R.A.D.A.R. Key Company, 11 Church Street, Exmouth,Devon EX8 1PE

You must have a mental or physical disability which is helped by using the key to access the specialist features available in accessible or Changing Places toilets plus countryside walks/ accessible routes within buildings.

Our website has information about the different British, Irish and continental, accessible toilet schemes, including how to buy keys/

As well as our Website we have phone apps with information about Changing Places Toilets – including each one’s facilities, opening hours and how to get there 




RNIB Newsagent (formally National Talking Newspapers and Magazines)


Email: [email protected]

Telephone: 0303 123 9999 (Monday to Friday 8.45 am to 5.30 pm)

Helpline: 0303 123 9999

Address: RNIB Newsagent, First Floor, Midgate House, Midgate, Peterborough PE1 1TN

RNIB Newsagent (formerly National Talking Newspapers and Magazines) provides a wide range of national newspapers and magazines.

You can find out more about our services and request a free trial by contacting us via our helpline 0303 123 9999 or by email [email protected]

Newspapers and magazines:

  • The major daily and weekend papers. Full text is available electronically so you can read with a screen reader of your choice, or you can receive selected audio highlights on CD, USB stick or digital download
  • The best features and articles from top-selling magazines including Reader’s Digest, BBC History Magazine, BBC Good Food and Which?
  • Specialist publications such as Flight International, Moneywise and New Scientist
  • Children’s magazines such as National Geographic Kids, First News and Aquila – children’s magazines are all available free of charge

Formats available 

  • Audio CD or USB: Delivered to your door
  • Online: If you have a mobile phone or computer, get your daily paper or magazine delivered to your inbox or download from our website
  • DAISY: DAISY CDs offer further navigation options over the audio you listen to. If you have a DAISY player, why not take a look at what titles are available from our newsagent service?
  • Braille: magazines available in double-sided contracted braille
  • Big Print If you have some vision but would like to read a bigger font, this could be a choice for you

Persons registered blind or partially sighted or those unable to read N12 type qualify for free postage’


Find us on Face Book @rnibuk and Twitter @RNIB

Registered Charity Number 226227


Whizz-Kidz- Ambassador Club in Shrewsbury (for young wheelchair/power chair users)


Email: [email protected] or [email protected]

Contact Form:

Telephone: 07788 435149 (Ron Davies)

Address: Whizz-Kidz, 4th floor, Portland House, Bressenden Place, London, SW1E 5BH.

Shrewsbury Ambassador Club, Walford & North Shropshire College, Walford Campus, Baschurch, Shropshire SY4 2HL If you are aged 10 to 25 and have physical disabilities we may be able to help you. All Whizz Kidz clubs are about having fun, making friends and learning new skills so come & get involved. We have qualified healthcare staff at our club! For further information either complete this form or email [email protected]


Find us on Face Book @WhizzKidz and Twitter @WhizzKidz

Registered charity No. 802872.